Information and Advocacy for People Interested in Hard
of Hearing Children.
I am sitting here with a cup of coffee and hope you stay a while.
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Grrreat Info
Coping with a hard of hearing child information
for you |
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lively discussions. Perhaps you can help others.
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bibliography,webography,links
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Not Deaf Enough
exactly the book I wanted when my child was diagnosed
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The little bears are called the HOH Bears, and are the essence
of the charm of a child who is hard of hearing. A child who has a mild or
moderate hearing loss has to deal with most of the problems of not hearing well,
and is expected to cope. Some "rights" of deafness are conferred on the deafer
people, and protected jealously. The focus of education and medical systems was
fatuously unaware of the problems caused by even a slight plugged ear during
childhood. Hearing aid companies advertised expensive products as "Best" hearing
aid.
Most people who used hearing aids were older, and postlingually deaf. They
did not have as high a need for amplification, and most hated their hearing
aids, and the need for them.
A great debate raged over methodology between oral and sign. I
believe the great debate prevented actual help getting to the kids. It was a big
sap of energy. Also a issue on which a member of a bureaucracy could make
studies, time charts, statistics, and rigid recommendations, and lines
preventing service to the larger groups. A deaf child was born 1 in 1500 births,
a child with a mild hearing loss is 1 in 9.
The "cracks in the education system" process hard of hearing children right
through school. 1 in 9 children have a hearing loss sufficient to remove plurals
and tenses from their language. Due to my son Reid's additional
handicaps, this website includes deafness and multiple handicaps information.
More information will be added over time.
The
internet has become a wonderful way to find information and get going on helping
a hard of hearing child. Nobody tells a parent reading something that it is too
technical or difficult for them to understand. Anyone who wants or needs to know
how to help to find material at exactly the level they need to begin, and find
more material at higher and higher levels. Many parents have become so empowered
with knowledge that they are able to start pounding on the lazy school system
and force changes to the home and educational environment through personal and
group advocacy.
My mentor was Dr. Daniel Ling OC. I used his method to teach my
son Reid to talk at a time when Reid officially had no services because he was
not deaf enough. My book is the first book in the world about hard of hearing
children. Dr. Carol Flexer has done a lot of research into the needs of hard of
hearing children. Reid was part of that long-term research. At the time my book
was written the idea of putting a FM on the child at home was radical, but it is
in my book that you will find the positive suggestions of what are problems, and
how to deal with them. My son was incapable of sitting down to work so we did
his language all day, interspersed in his normal active life. He has the best
speech of any hard of hearing child, and he began with three sounds BA MA
and WA at age 2.
I also fought in Canada and the United States for newborn
hearing testing, at a time when the last thing anyone wanted was to know how a
baby hears. I am still fighting for hard of hearing children by writing this
web. The web took two years to write, and has been up and growing since May
2000.
I believe that a writer should have a profound knowledge of the
subject matter and personal experience of the emotions. I do, and all the other
people who come to this web, come back again can help you, and you can help
someone else.
Web Policies
|
|
Author s Credentials
|
The
information on hard of hearing children provided on this site is
designed to support, not replace, the relationship that exists
between a patient/site visitor and his/her existing physician.
As a matter
of policy, I suggest
every child with questionable hearing should consult with an
audiologist.
The
information in this web is usually available in the public
domain, meaning there are more than two sources available for
the information. When the information is creditable to a person
or institution, credit for the source is always given, and more
often than not, a link.
Any
personal information submitted
to this site will not be passed along without your permission.
The discussion group is a public posting area for anyone. You
may use a pseudonym if you choose. I always ask for permission
to use material from the writer before putting it in the web and
give credit.
There is an experimental advertising from google ad sense, at
present.
Advertising
would be accepted at $US 100 per 1000 clicks. |
|
Virtual Knowledge
My knowledge in this field is founded on on
a literature search I did when we found out our child had a hearing
loss. I have a Master's in Library Science from McGill University,
so the margins of this original research probably amounted to a Phd.
Living with a child who has special needs gives most parents an
intensive amount of information in the school of hard knocks.
Subsequent to the personal quest through library systems, a
manuscript was written, Not Deaf Enough and accepted by A.G.Bell
Association after review by all the important people in oral deaf
education like Dr. Daniel Ling, Dr.Carol Flexer, Miriam Northcott,
Judy Simser. I have read all of the Drs. Ling's books many times,
taken two seminars "Speech and the Hearing-Impaired Child" and
"Foundations of Spoken Language for Hearing-Impaired Children" at
the University of Western Ontario and have 1.6 post-graduate credits
from OSLA for passing the take-home exam. I have been my own child's
auditory/verbal therapist for 1 and a half hours a day since he was
a pre-schooler. I regularly attend conferences. I have a good
collection of books and articles in the field of deaf education, and
an excellent collection of net-based information and contacts.
|
E-knowledge
I
also am researching, on-line DCD-developmental coordination disorder or
dyspraxia, learning disabilities, dysgraphia, 'dysorganization', dyscalculia,
and Deafness-multiple disabilities (not much out there) have taken on-line
courses from SNOW in adaptive technology, participated in forums at OED, and
about.com and have used oral computers for over 6 years.
Web Policies |
|
The information
on hard of hearing children provided on this site is designed to support,
not replace, the relationship that exists between a patient/site
visitor and his/her existing physician.
As a matter of policy, I
suggest every child with questionable hearing should consult with an
audiologist.
The
information in this web is usually available in the public domain, meaning
there are more than two sources available for the information. When the
information is creditable to a person or institution, credit for the source
is always given, and more often than not, a link.
Any personal
information submitted
to this site will not be passed along without your permission. The
discussion group is a public posting area for anyone. You may use a
pseudonym if you choose. I always ask for permission to use material from
the writer before putting it in the web and give credit.
Royalties
from sales of Not Deaf Enough are used to support this web. There is an
experimental advertising from google ad sense, at present.
Advertising
would be accepted at $US 100 per 1000 clicks.
|
se Award for eHealth - 2004, in the category "eHealth Information tools and
services for citizens." |
The internet has
become a wonderful way to find information and get going on helping a hard of
hearing child. Nobody tells a parent reading something that it is too technical
or difficult for them to understand. Anyone who wants or needs to know how to
help to find material at exactly the level they need to begin, and find more
material at higher and higher levels. Many parents have become so empowered with
knowledge that they are able to start pounding on the lazy school system and
force changes to the home and educational environment through personal and group
advocacy. My mentor was Dr. Daniel Ling OC. I used his method to
teach my son Reid to talk at a time when Reid officially had no services because
he was not deaf enough. My book is the first book in the world about hard of
hearing children. Dr. Carol Flexer has done a lot of research into the needs of
hard of hearing children. Reid was part of that long-term research. At the time
my book was written the idea of putting a FM on the child at home was radical,
but it is in my book that you will find the positive suggestions of what are
problems, and how to deal with them. My son was incapable of sitting down to
work so we did his language all day, interspersed in his normal active life. He
has the best speech of any hard of hearing child, and he began with three
sounds BA MA and WA at age 2. I also fought in Canada and the
United States for newborn hearing testing, at a time when the last thing anyone
wanted was to know how a baby hears. I am still fighting for hard of hearing
children by writing this web. The web took two years to write, and has been up
and growing since May 2000. I believe that a writer should have a
profound knowledge of the subject matter and personal experience of the
emotions. I do, and all the other people who come to this web, come back again
can help you, and you can help someone else.
Author's
Credentials
Virtual Knowledge
My knowledge in
this field is founded on on a literature search I did when we found out our
child had a hearing loss. I have a Master's in Library Science from McGill
University, so the margins of this original research probably amounted to
a Phd.
Living with a child who has special needs gives most parents an intensive
amount of information in the school of hard knocks. Subsequent to the personal
quest through library systems, a manuscript was written, Not Deaf Enough and
accepted by A.G.Bell Association after review by all the important people in
oral deaf education like Dr. Daniel Ling, Dr.Carol Flexer, Miriam Northcott,
Judy Simser. I have read all of the Drs. Ling's books many times, taken two
seminars "Speech and the Hearing-Impaired Child" and "Foundations of Spoken
Language for Hearing-Impaired Children" at the University of Western Ontario and
have 1.6 post-graduate credits from OSLA for passing the take-home exam. I have
been my own child's auditory/verbal therapist for 1 and a half hours a day since
he was a pre-schooler. I regularly attend conferences. I have a good collection
of books and articles in the field of deaf education, and an excellent
collection of net-based information and contacts.
E-knowledge
I also am
researching, on-line DCD-developmental coordination disorder or dyspraxia,
learning disabilities, dysgraphia, 'dysorganization', dyscalculia, and
Deafness-multiple disabilities (not much out there) have taken on-line courses
from SNOW in adaptive technology, participated in forums at OED, and about.com
and have used oral computers for over 6 years.
hardofhearingchildren.com
is read in these countries: |
Andorra Antigua
Barbuda Argentina Aruba
Australia Austria Bahamas Bangladesh Belarus Belgium Belize Bermuda Bosnia
Herzegovina Brazil Brunei Darussalam Bulgaria Burkina Faso Cambodia Cameroon
Canada Cayman Islands Chile China Cocas (Keeling) Islands Colombia Costa
Rica Croatia (Hruatska) Cyprus Czech Republic Denmark Dominican Republic
Egypt Estonia Ethiopia European Union Fiji Finland France Georgia Germany
Ghana Gibraltar Great Britain Greece Guam Guatemala Guyana Honduras Hong
Kong Hungary Iceland India Indonesia Iran Ireland Israel Italy Jamaica Japan
Jordan Kazakhstan Kenya Kuwait Latvia Lebanon Libya Liechtenstein Lithuania
Luxembourg Malaysia Maldives Malta Mauritius Mexico Moldova Mongolia Morocco
Namibia Nepal Netherlands New Caledonia New Zealand Nigeria Norway Oman
Pakistan
Palestinian Territories Panama Paraguay Peru Philippines Poland Portugal Puerto Rico Qatar
Romania Russian Federation Rwanda Samoa Islands Saudi Arabia Senegal
Seychelles Singapore Slovak Republic Slovenia South Africa South Korea Spain
Sri Lanka Sweden Switzerland Syria Taiwan Tanzania Thailand Trinidad and
Tobago Turkey Uganda Ukraine United Arab Emirates United Kingdom United
States US government US educational US commercial US military Uruguay
Venezuela Vietnam Virgin Islands Yugoslavia Zambia
October 2005 |
In 2000, the first year of
hardofhearingchildren.com, most of the hits were from the United States and
Canada. the red areas are the countries which have been collected in my stats
programs in 2004.
Such is the power of the net to get ideas across to other
people.and show that people may be at war, but they still have hohkids who need
help.
A Map of the
Geographic Spread of my Web as of Oct 2004.
http://www.lib.utexas.edu/maps/world_maps/world.jpg
permission pending.
I am
Patricia Ann Morgan Candlish BA
MLS otherwise known as
PAM,
or 'mothermorgan'
or 'mamahohbear'.
e-mail me any time.
I am always glad to hear from people.
> In
recognition of creativity, integrity and excellence on the Web.
Thank You |
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